Patient-reported Outcomes: A Paradigm Shift in the Measurement of Clinical Outcomes

The future of measuring patient-reported outcomes in rheumatology: Patient-Reported Outcomes Measurement Information System (PROMIS).

The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS; trademarked by the National Institutes of Health) Roadmap initiative (available at www.nihpromis.org) is a cooperative research program designed to develop, evaluate, and standardize item banks to measure patient-reported outcomes across different medical conditions as well as the US population (...

Patient-Reported Outcomes in Performance Measurement

Patient reported outcomes and patient empowerment in clinical genetics services.

Evaluation of clinical genetics services (CGS), including genetic counseling and genetic testing, has been problematic. Patient mortality and morbidity are unlikely to be directly improved by interventions offered in CGS. Patient-reported outcomes (PROs) are not routinely measured in CGS evaluation, but this may change as patient-reported outcome measures (PROMs) become a key part of how health...

Patient-Reported Outcomes, Patient-Reported Information

Internet communication is developing. Social networking sites enable patients to publish and receive communications very easily. Many stakeholders, including patients, are using these media to find new ways to make sense of diseases, to find and discuss treatments, and to give support to patients and their caregivers. We argue for a new definition of patient-reported information (PRI), which di...

Patient-reported Outcomes

Key points Many gastrointestinal diseases are symptomdriven, so the patient’s perspective is particularly important in this area. Patient-reported outcomes (PROs) provide essential information that objective measures and clinician assessment may fail to capture. PROs can be measured in a scientific, reliable, and valid manner. Generic, disease-specific and treatmentspecific PRO instruments exis...